Comments for Life After Lyme Disease

Comment on The Crucial Role Physicians Play in Minimizing the Impact of Lyme Disease by Tnkrbell

Tnkrbell — Mon, 15 Mar 2010 02:06:48 +0000

I just wanted to add that testing in any stage of Lyme disease is inaccurate. The commonly used tests (ELISA and western blot)rely on immune response in order for a positive result to occur. A healthy immune system is not something that ill people tend to have, especially those with chronic lyme disease therefore many of the most ill people tend to have a negative result even tho they are infected.

Comment on New Hampshire Bill Lets Doctors Treat Lyme Disease With Long Term Antibiotics by CSZ

CSZ — Wed, 10 Mar 2010 16:59:28 +0000

No, but I know a doctor who has the AMA breathing down their neck for treating a Lyme disease patient with long term antibiotics. There is probably no doctor in the area who will treat your girlfriend for Lyme disease, for fear of loosing their medical license.

NH House Bill 1326 passed the House. It is imperative that you, your girlfriend, and anyone who knows and cares about their medical care write to your senators and Governor Lynch, to vote on, pass and sign this legislation.

Please note this legislation does not require insurance coverage of this disease, only allows doctors to treat this condition as they see fit without fear of reprisal. Until then your only other choice may be to seek out of state care.

Comment on Parker Posey Beat Lyme Disease with a Holistic Cure by lisa

lisa — Tue, 09 Mar 2010 22:53:36 +0000

I am still sick, keith what do you mean when you say you are not cured? I got sick in 1996 treated off and on antibiotics for a few years. I am very tired have troube with legs knees and my cognitive functioning is pathetic,

Comment on New Hampshire Bill Lets Doctors Treat Lyme Disease With Long Term Antibiotics by Paul Johnson

Paul Johnson — Thu, 04 Mar 2010 17:45:22 +0000

I live in NH, my girlfriend is battling Lyme disease as misstreated for 10 years. She needs a new doctor. The doctors she has seen leave it to the nurses to do everything. She is not given attention from a doctor to fully work towards a treatment. Does anyone know of a reliable doctor for Lyme disease around Manchester NH?
I too had a tick bite three years ago and have felt same symptoms, could my Lyme test of been incorect? We just need to find a doctor that will attack this 110%. What happened to hope?

Comment on The Spread of Lyme Disease – Canada Now Under Threat by Alison

Alison — Mon, 01 Mar 2010 21:27:46 +0000

Thank you for bringing up the topic of Lyme disease in Canada. There are many peple living ( surviving) here with the disease and have been ignored or cast aside because of a lack of information about the disease, its signs and symptoms and also how it is spread. They seem scared to use their own common sense in diagnosing the disease and for some reason think they MUST see positive ELISA and or Western blot results before they are willing to say that “probably” their patient has Lyme disease.

The more awareness of Lyme in this country the happier I shall be

Thanks again

Alison

PS Have you checked out canlyme.com?

PPS a friend of mine in the UK has a blog called Looking at Lyme and is gathering information from around the world about Lyme and many of the diseases we are wrongly diagnosed as having!!

Comment on Parker Posey Beat Lyme Disease with a Holistic Cure by VICKY

VICKY — Mon, 01 Mar 2010 14:37:07 +0000

If she had Lyme at all, it must have been very early. After 4 years, I was finally correctly diagnosed. 9 months IV piccline, more drugs than I like. It’s a living hell, as any sufferer will tell you.:

http://www.youtube.com/watch?v=sxWgS0XLVqw

Comment on Parker Posey Beat Lyme Disease with a Holistic Cure by Keith Poullos

Keith Poullos — Sun, 28 Feb 2010 03:21:34 +0000

I hope for your sake by some miracle that you are in fact cured but I have been down both roads. As far as I can tell for chronic Lyme disease is a lot harder to beat that what you say. I am a lot better than five years ago but cured no way. I am always hopeful and I will never quit trying to cure this. I am confident that one day I will conquer this blasted disease.

Keith Poullos

Comment on Parker Posey Beat Lyme Disease with a Holistic Cure by Cam

Cam — Sat, 06 Feb 2010 14:40:54 +0000

Not buying it. Try 9 months of Cefapime I.V. and get back with me.

Comment on Massachusetts Legislative Hearing Next Week! by Barbara Burrows

Barbara Burrows — Sun, 20 Sep 2009 15:05:23 +0000

Partner has Lyme Disease – suffering since June – cannot get proper treatment – just rec’d results from brain scan and EKG. . LD has entered into brain and heart. Will be given PIC Line for intravenous treatment, but can only get 2 wks. Doctor says academy of neurologist only allows 2 wks. Need this bill to pass so doctors who believe antibiotic treatment must be longer can do what they know is right.

Comment on Lyme Disease Featured on Dr. Mehmet Oz’s “Oprah & Friends Radio Show” by Absilon

Absilon — Wed, 16 Sep 2009 19:26:21 +0000

Hi Tiana, sorry for such a late response, I’ve been pretty sick for a while so I couldn’t keep up with all my writing. I’m feeling a bit better now so hopefully I’ll be posting on a regular basis again.

I hope that you have found a good Lyme literate doctor and are feeling better now. Keep us informed and best wishes to you.